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  • Discontinuation of Liquid Hydrocortisone: Letter Template to contact your MP

    Discontinuation of Liquid Hydrocortisone: Letter Template to contact your MP

    Let your MP know how you feel about the discontinuation of the manufacture of liquid hydrocortisone in the UK. A template letter for you to fill out and post to your MP (or equivalent in the devolved nations), or to copy and paste into an email. Read more

  1. About Addison's Disease
  2. Downloadable publications

Downloadable Publications

Discontinuation of Liquid Hydrocortisone: Letter Template to contact your MP

Discontinuation of Liquid Hydrocortisone: Letter Template to contact your MP

Let your MP know how you feel about the discontinuation of the manufacture of liquid hydrocortisone in the UK. A template letter for you to fill out and post to your MP (or equivalent in the devolved nations), or to copy and paste into an email. Read more

Published: 26th March, 2026

Updated: 15th April, 2026

Author: Cathy Thompson

Summary Care Record Letter for GPs

Summary Care Record Letter for GPs

A letter for you to fill out and send/ give to your GP to ensure your Summary Care Record is updated with your condition and steroid dependent status. Read more

Published: 23rd May, 2025

Updated: 19th June, 2025

Author: Cathy Thompson

Adrenal Insufficiency Action Plan and 3-month Prescription Request Letter

Adrenal Insufficiency Action Plan and 3-month Prescription Request Letter

Action Plan: A clear and easy to understand leaflet with all the key points about how to optimally manage your adrenal insufficiency, including Addison's disease. For you to keep with you at all times, and to share with others that need help to better understand your condition Read more

Published: 3rd February, 2025

Updated: 13th May, 2026

Author: Cathy Thompson

Notes for Nurses: managing Addison's & adrenal insufficiency

Notes for Nurses: managing Addison's & adrenal insufficiency

Read more

Published: 3rd February, 2025

Updated: 19th November, 2025

Author: Cathy Thompson

Steroid Medication and Emergency Injection Refusal Letters

Steroid Medication and Emergency Injection Refusal Letters

Working with the ADSHG Clinical Advisory Panel we have created these letters to support and provide you with practical resources when advocating for yourself in a healthcare setting. Read more

Published: 21st January, 2025

Updated: 18th June, 2025

Author: Cathy Thompson

ADSHG Posters

ADSHG Posters

Help raise awareness of Addison's disease and adrenal insufficiency by sharing our posters. Read more

Published: 7th August, 2023

Updated: 2nd June, 2025

Author: Chloe Mezzetti

Surgical Guidelines

Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel. Read more

Published: 5th July, 2022

Updated: 12th February, 2026

Author: Anonymised User

What are Addison's disease and adrenal insufficiency?

What are Addison's disease and adrenal insufficiency?

An introduction to Addison's disease and adrenal insufficiency, aimed at raising awareness in the general public. Read more

Published: 16th August, 2021

Updated: 15th June, 2025

Author: Vick Smith

Steroid Emergency Cards

Steroid Emergency Cards

People who take steroid medications every day of their life will need to carry a steroid card which identifies to healthcare professionals that their medication cannot be stopped. Find out more about the cards available. Read more

Published: 9th May, 2021

Updated: 17th October, 2025

Author: Philippa Sharman

Diagnosis Infographics.

Diagnosis Infographics. "Think Addison's disease - save a life"

Download the CoMICs diagnosis of Addison's disease infographics and accompanying article "Think Addison's disease - save a life", as featured in the Guardian newspaper. Read more

Published: 9th May, 2021

Updated: 2nd June, 2026

Author: Philippa Sharman

Fasting with Adrenal Insufficiency

Fasting with Adrenal Insufficiency

A patient leaflet for people living with adrenal insufficiency who are thinking about fasting for Ramadan. It gives tips on reducing the risks of becoming ill if you decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting. Read more

Published: 6th April, 2021

Updated: 2nd December, 2025

Author: Vick Smith

How to give an emergency injection - leaflets for your kit

How to give an emergency injection - leaflets for your kit

Having the instructions for your injection kit helps you, or anyone coming to your aid, to inject you. We have a selection of guides your can print, fold and add to your kit. Be careful to choose instructions that match the type of medication that you have available. Read more

Published: 13th October, 2020

Updated: 19th November, 2025

Author: Vick Smith

About the Addison's Disease Self Help Group

About the Addison's Disease Self Help Group

This leaflet, 'About the Addison's Disease Self-Help Group' tells our story and defines our goals and our impact. It is designed to help people with Addison's, their carers, medics and other interested parties to undertand our work and how we can support those with Addison's and Adrenal Insufficiency. Read more

Published: 28th January, 2020

Updated: 11th March, 2026

Author: Vick Smith

ADSHG adrenal crisis guidelines

ADSHG adrenal crisis guidelines

The ADSHG adrenal crisis guidelines give emergency medical treatment guidance for ambulance or hospital staff in the event of a person with adrenal insufficiency, including Addison's, experiencing an adrenal crisis. Read more

Published: 16th September, 2019

Updated: 20th November, 2025

Author: Vick Smith

GPs: Diagnosis & Care of the Adrenal Insufficiency Patient, including Addison's disease

GPs: Diagnosis & Care of the Adrenal Insufficiency Patient, including Addison's disease

This guide outlines the role of the GP in diagnosis of adrenal insufficiency, including Addison's disease, and supporting the effective management of these rare conditions. Read more

Published: 19th March, 2019

Updated: 8th December, 2025

Author: Anonymised User

Medical Summary & Consultation Reference Guide

Medical Summary & Consultation Reference Guide

Make the most of your appointments with our Medical Summary leaflet and Consultation Reference Guide. Read more

Published: 19th March, 2019

Updated: 15th July, 2025

Author: Anonymised User

Employers leaflet: When An Employee Has Addison's Disease or Adrenal Insufficiency

Employers leaflet: When An Employee Has Addison's Disease or Adrenal Insufficiency

This 'When an employee has Addison's Disease or Adrenal Insufficiency' leaflet was written to help those newly diagnosed – or moving to a new job, to explain their condition to an employer and to help their employer understand what reasonable adjustments may be necessary to support you. Read more

Published: 19th March, 2019

Updated: 14th January, 2026

Author: Anonymised User

Managing Your Addison's and adrenal insufficiency

Managing Your Addison's and adrenal insufficiency

This overview and practical guide on Managing Addison's disease and adrenal insufficiency has been developed in line with the NICE guidelines for the identification and management of adrenal insufficiency, and reviewed by the ADSHG Clinical Advisory Panel. Read more

Published: 19th March, 2019

Updated: 16th March, 2026

Author: Anonymised User

When A Student Has Addison's : A Guide For Schools & Parents

When A Student Has Addison's : A Guide For Schools & Parents

Our booklet "When a student has Addison's: a guide for schools and parents" was written to help young people with Addison's who are in education to explain the condition, considerations needed and support required by a school or educational establishment. Read more

Published: 19th March, 2019

Updated: 10th August, 2023

Author: Anonymised User

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Latest

  • Manchester Member Get-Together: 26 Sept 2026

    Manchester Member Get-Together: 26 Sept 2026

    Join our second Member Get-Together in 2026, to be held in Manchester on Saturday 26 September. Find out more and how to get your tickets! 

  • Professor John Wass Research Grant Winner 2026

    Professor John Wass Research Grant Winner 2026

    We are proud to award a £10,000 grant to support Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham with their research into the management of adrenal crises in UK hospitals. The data collected will help clarify best practice and drive improvement in adrenal crisis care.

  • ADSHG AGM - Saturday 4 July 2026

    ADSHG AGM - Saturday 4 July 2026

    Sign up to attend the 2026 AGM for the Addison's Disease Self-Help Group. Enjoy a presentation from the John Wass Research Grant Award winners for 2026 about their research study around adrenal crisis management in hospitals.

  • Emily’s Story: Sharing Life with Addison’s Online

    Emily’s Story: Sharing Life with Addison’s Online

    Emily is a content creator who shares her journey with Addison’s online, alongside her countryside living in the Lake District. For her advocacy is more than awareness, it’s about making our “invisible” health condition seen and understood.

Most read

  • Sick Day Rules

    Sick Day Rules

    Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.

  • Adrenal Crisis - Emergency Help

    Adrenal Crisis - Emergency Help

    Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.

  • The Emergency Injection for the treatment of Adrenal Crisis

    The Emergency Injection for the treatment of Adrenal Crisis

    Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.

  • What are Addison's disease and adrenal insufficiency?

    What are Addison's disease and adrenal insufficiency?

    Find out more about Addison's disease and adrenal insufficiency and and how they are treated.

  • Why Salt?

    Why Salt?

    Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.

  • Addison's & Adrenal Insufficiency: Advice for Dentists

    Addison's & Adrenal Insufficiency: Advice for Dentists

    Read our guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • Coping with psychological stress

    Coping with psychological stress

    We explain why more hydrocortisone may be required to cope with emotional stress and outline some techniques to reduce stress and improve wellbeing.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

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AGM Conference Ireland
Research Grants

Research Grants

One important strand of our work as a charity is our 'Advance' strand: funding, promoting and contributing to the development of new innovations and research to improve treatments and quality of life for members of the adrenal insufficiency community. Here we share the projects we are currently supporting thanks to the generosity of our donors, members and fundraisers. Read more

Published: 22nd May, 2023

Updated: 7th January, 2026

Author:

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Copyright © Addison's Disease Self-Help Group Registered as Charity number 1179825. Company number CE015063

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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