Endocrinology Hub for Healthcare Professionals

Welcome to our Endocrinology Hub, where we have brought the most relevant information for endocrinology healthcare professionals all into one place.

Explore our updates on the latest research, guidance and support offerings to help you continue to deliver marvellous care for people with Addison's disease and adrenal insufficiency.

Sign up for our healthcare professionals' quarterly e-newsletter, work with us to provide Emergency Injection Training to your patients, host an awareness stand and learn about our research grants.

We have lots of information to support you and your patients. You may also enjoy our latest News and Blog updates. Read on and get involved!

ADSHG Connection: HCP e-newsletter

Steroid Emergency Cards

Have you issued a steroid emergency card to your adrenal insufficiency patients?

It could save a life!

Emergency Injection Kits

Essential and included in the NICE Guidance, for patients to manage an adrenal crisis wherever they are and to buy vital time if there is a delay to their admission to A&E.

See inside our emergency kits and explore their life saving contents.

The Future of Emergency Injections - and why there isn't a more sophisticated system

One of the most frequently asked questions we get from our members and the wider adrenal insufficiency community, is;

"Why isn't there something like an 'epi-pen' for us to use to give ourselves a quick and easy emergency injection'?

It is a very good and valid question, and we share the various considerations, as well as our thoughts on the answer, in our article below.

Let us support your Patient Injection Training

Get involved in our new campaign and events programme to improve patient safety and increase the number of people who feel confident administering an emergency injection of hydrocortisone.

Take part in an Injection Training Event (approx 2-3hrs) for up to 50 patients in your area. Everyone will leave with a FREE ADSHG Injection Training 'at home' Practice Kit worth £14.75

We can support with organising, marketing and funding, but we need your:

expertise to deliver the injection training
venue support where possible

For more information, go to our 'Injection Training Event' webpage or click on the link below to contact us about next steps.

Register your interest

Leaflets & Publications

Explore and download our HCP and patient facing leaflets and publications from our website including Managing Your Addisons, Surgical Guidelines and Fasting with Adrenal Insufficiency.

Download & print

Browse our range of publications and download colour versions to print.

Consultation Guide

Written in collaboration with SfE, Sofia Llahana & Prof John Wass. Ensure you cover key points at diagnosis, follow-up reviews and treatment monitoring.

Leaflets for your clinic?

Purchase individually or in pre-collated bundles from our online shop.

Patient Information and Care

Signpost your patients to our information and support

Sick Day Rules

Increase their confidence in managing their medication when they are unwell.

Preparing for admission

Ensure they are aware and prepared with what to bring with them.

Vaccine information

Keep your patients up to date on the latest vaccination advice.

Families, Children & Young People

Addison's disease and adrenal insufficiency can be diagnosed at any age. We provide support and information about the specific issues facing children, teenagers and their families

Children & Young Adults

Get involved with the ADSHG

We are so grateful to all our medic volunteers and there are always plenty of ways you can get involved to support our work and continue your professional development at the same time. Support our work.

Research

We are keen to support healthcare professionals working in the endocrinology sector with their research.

Raise Awareness

Run an Awareness Stand on Addison's Disease Day (29 May) or any other day of the year!

Provide Clinical Support

Support the ADSHG with your expertise at our Member events, or through our CAP

Sign up to our HCP News & Updates Newsletter to stay in touch

Please take a moment to subscribe to our Healthcare Professional News & Updates mailing list. We will send out 2 or 3 updates a year, giving you key information about the world of adrenal insufficiency. Unsubscribe at any time.

What's new in Endocrinology care?

Read more about the current hot topics!

	NICE releases new guidance for adrenal insufficiency Read about the first-ever national guidance for the identification and management of adrenal insufficiency. Watch Dr Helen Simpson's SfE Webinar: "What you need to know about the new adrenal insufficiency NICE Guidelines"
	Addison's, adrenal insufficiency and patient safety In collaboration with RCP, we talk through the NICE Guidelines, changes in ambulance care, 'red flagging' and tragic Prevention of Future Death reports showing the need for improved patient safety. Read more.
	Drug shortage alert: injectable hydrocortisone The Department of Health and Social Care (DHSC) has confirmed an upcoming shortage of hydrocortisone sodium phosphate for emergency injection kits from the end of February 2025, with supply expected to resume in May 2026. Read more.
	Ambulance care - moving away from 'Red Flagging' Following review the AACE (Association of Ambulance Chief Executives) have recommended that 'Red Flags' should no longer be used and ambulance Trusts have either ceased or will cease the use of 'Red Flags'. Read more.
	U-RHYTHM Dr Thomas Upton updates us on the development of U-RHYTHM, a wearable device to measure hormones, including cortisol levels, in the body over the full 24 hours, following the release of their clinical trial study, Read more.
	The PULSES trial - Pulsatile Cortisol Infusion Pump Dr Georgina Russell updates us on The PULSES trial, looking at the effect of pulsatile cortisol pump therapy on quality of life, mood, sleep, behavioural and cognitive processing and metabolism. Read more.
	Digital steroid coding system Endocrine Nurse Specialist, Becci Watling, speaks about the implementation of their digital steroid coding system, improving safety and experience for people admitted to hospital with adrenal insufficiency. Read more.
	The 4E: Engage, Educate, Equip & Empower Sherwin Criseno explains 'The 4E’ initiative, used to support people with Addison’s, adrenal insufficiency and clinicians, and the positive impact this has on those who live with rare diseases quality of life. Read more.
	Fasting with adrenal insufficiency during Ramadan Shazia Hussain shares more about the research behind this vital patient resource. The leaflet is for those thinking of fasting for Ramadan, giving tips on reducing the risks of becoming ill if they decide to fast, when it's advisable not to fast and offers alternatives to those who are considered too high risk for fasting. Read more.
	A name change for Solu-Cortef The previously branded ‘Solu Cortef’ hydrocortisone injection will now be known as ‘Hydrocortisone 100mg Powder for Solution for Injection or Infusion’ as it changes to the generic version. Read on for resources to support your patients for prescription changes.
	Make a stand! Addison's awareness in hospital Endocrine Nurse Specialist, Joanne Brown shares how she organised an Addison's awareness stand for Addison’s Disease Day (29 May) and the impact of educating her colleagues on the needs of steroid-dependent patients. Read Joanne's blog. Inspired to create your own stand - learn more and sign up!

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Latest

Manchester Member Get-Together: 26 Sept 2026

Join our second Member Get-Together in 2026, to be held in Manchester on Saturday 26 September. Find out more and how to get your tickets!
Professor John Wass Research Grant Winner 2026

We are proud to award a £10,000 grant to support Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham with their research into the management of adrenal crises in UK hospitals. The data collected will help clarify best practice and drive improvement in adrenal crisis care.
ADSHG AGM - Saturday 4 July 2026

Sign up to attend the 2026 AGM for the Addison's Disease Self-Help Group. Enjoy a presentation from the John Wass Research Grant Award winners for 2026 about their research study around adrenal crisis management in hospitals.
Emily’s Story: Sharing Life with Addison’s Online

Emily is a content creator who shares her journey with Addison’s online, alongside her countryside living in the Lake District. For her advocacy is more than awareness, it’s about making our “invisible” health condition seen and understood.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
What are Addison's disease and adrenal insufficiency?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Addison's & Adrenal Insufficiency: Advice for Dentists

Read our guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Coping with psychological stress

We explain why more hydrocortisone may be required to cope with emotional stress and outline some techniques to reduce stress and improve wellbeing.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

Research Grants

One important strand of our work as a charity is our 'Advance' strand: funding, promoting and contributing to the development of new innovations and research to improve treatments and quality of life for members of the adrenal insufficiency community. Here we share the projects we are currently supporting thanks to the generosity of our donors, members and fundraisers. Read more