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  • ADSHG Strategy, Reports and Constitution

ADSHG Strategy, Reports and Constitution

To better understand our impact and activities, please enjoy browsing our Trustee reports from the last 5 years.    

Highlights from our 2025 Report

2025 was a busy and productive year where we settled into new routines behind the scenes, and started to build on our stronger foundations.  We expanded our team slightly, welcoming Charlotte Owst as a part-time social media assistant.  We are extremely proud of our achievement to train over 930 Paramedics and EMTs in adrenal crisis management; and our online clinically approved course, presented by people with lived experience, has been given excellent feedback and supported by the Association of Ambulance Chief Exectives (AACE).  We hosted 2 in person member events as well as running online webinars around emotional wellbeing and parenting with a rare condition. We were also thrilled to host 2 webinars directly aimed at young people with adrenal insufficiency, including Addison's disease.   

We very much look forward to continuing with projects begun in 2025, and rolling onwards, including The Real Story: our multi-stakeholder group looking at taking action to improve adrenal crisis management in the UK.
2025 Impact figures:

31,000+

Social Media reach, allowing us to spread awareness and accurate information

190

People given face-to-face emergency injection training

937

Paramedics trained in Adrenal Crisis Management Awareness

Full 2025 Report

Previous Trustee's Reports & Accounts

If you would like to compare our current status to previous reports, you can find them below:


2024
2023
2022
2021

Impact Reports

We asked 460 people with adrenal insufficiency, how the ADSHG impacted their lives this year.  Read our Impact report for insight into how we are achieving our goals and supporting the Addison's and adrenal insufficiency community.

ADSHG Impact Report 2022

Our Strategy

The ADSHG receives strategic guidance from its board of trustees: a group of volunteers who come together to share lived experience and professional expertise.   We met in February 2025 to re-evaluate the direction of the charity, in response to member needs, achievements and developments already made, and set new targets based on up-to-date information.

ADSHG Strategy 2025-2028

About the ADSHG

Our History
Our Constitution
Our Team

Published: 3rd June, 2022

Updated: 3rd June, 2026

Author: Vick Smith

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Latest

  • Manchester Member Get-Together: 26 Sept 2026

    Manchester Member Get-Together: 26 Sept 2026

    Join our second Member Get-Together in 2026, to be held in Manchester on Saturday 26 September. Find out more and how to get your tickets! 

  • Professor John Wass Research Grant Winner 2026

    Professor John Wass Research Grant Winner 2026

    We are proud to award a £10,000 grant to support Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham with their research into the management of adrenal crises in UK hospitals. The data collected will help clarify best practice and drive improvement in adrenal crisis care.

  • ADSHG AGM - Saturday 4 July 2026

    ADSHG AGM - Saturday 4 July 2026

    Sign up to attend the 2026 AGM for the Addison's Disease Self-Help Group. Enjoy a presentation from the John Wass Research Grant Award winners for 2026 about their research study around adrenal crisis management in hospitals.

  • Emily’s Story: Sharing Life with Addison’s Online

    Emily’s Story: Sharing Life with Addison’s Online

    Emily is a content creator who shares her journey with Addison’s online, alongside her countryside living in the Lake District. For her advocacy is more than awareness, it’s about making our “invisible” health condition seen and understood.

Most read

  • Sick Day Rules

    Sick Day Rules

    Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.

  • Adrenal Crisis - Emergency Help

    Adrenal Crisis - Emergency Help

    Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.

  • The Emergency Injection for the treatment of Adrenal Crisis

    The Emergency Injection for the treatment of Adrenal Crisis

    Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.

  • What are Addison's disease and adrenal insufficiency?

    What are Addison's disease and adrenal insufficiency?

    Find out more about Addison's disease and adrenal insufficiency and and how they are treated.

  • Why Salt?

    Why Salt?

    Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.

  • Addison's & Adrenal Insufficiency: Advice for Dentists

    Addison's & Adrenal Insufficiency: Advice for Dentists

    Read our guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

  • Updated NHS Steroid Card Released

    Updated NHS Steroid Card Released

    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

  • Coping with psychological stress

    Coping with psychological stress

    We explain why more hydrocortisone may be required to cope with emotional stress and outline some techniques to reduce stress and improve wellbeing.

  • Coronavirus Vaccines and Adrenal Insufficiency

    Coronavirus Vaccines and Adrenal Insufficiency

    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

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AGM Conference Ireland
Research Grants

Research Grants

One important strand of our work as a charity is our 'Advance' strand: funding, promoting and contributing to the development of new innovations and research to improve treatments and quality of life for members of the adrenal insufficiency community. Here we share the projects we are currently supporting thanks to the generosity of our donors, members and fundraisers. Read more

Published: 22nd May, 2023

Updated: 7th January, 2026

Author:

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Copyright © Addison's Disease Self-Help Group Registered as Charity number 1179825. Company number CE015063

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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