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  • Online forum

Online forum

Our Forum is a vibrant community of ADSHG members offering mutual support and help. It is a key membership benefit of the ADSHG, providing subscribing members with the opportunity to share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's and adrenal insufficiency.

The site is simple to use. If you just want to read the existing conversations, you can choose a topic from the message boards. Or start your own topic and conversation! To join the community and have your say, you will need to be a ADSHG member. Your details will not be passed on to any third parties.

Existing ADSHG Member? Enter the online forum


Why join our forum?

One of the best ways to gain new knowledge and information about Addison’s and adrenal insufficiency is through the experiences of other people with the condition. Even though you may feel alone, our forum brings together hundreds of people who will have faced similiar challenges to yourself and can exchange knowledge and support through shared experience. Join our community and find your people!

Even if you feel that you don't need advice, you may be in a position to offer it and to help others by joining our community. 


Who can join?

The ADSHG Forum is for everyone living with Addison’s and adrenal insufficiency, their families, friends and all those who support them. We have members from all around the world! People who could be thinking and feeling the same way as you.

You’ll need to be a member of the ADSHG to read previous conversations, ask questions or answer other people's questions within the Forum. It's easy to sign up, and you don’t need to use your real name when on the Forum if you don’t want to. 

Become a member

If can’t afford membership at this time – no problem, we want to make sure everyone receives the support they need. Our Trustees operate a Fund for people unable to afford the membership fee. To apply, please see our 'Join Us' page.


Access our library of videos from past events

On the Forum, you'll also be able to access recordings of previous events, including our AGM@Home series, which includes:

  • Talk from Endocrine Consultant Specialist Dr Helen Simpson on "Understanding the basics of Addison's disease".
  • Talk from Endocrine Consultant Specialist Dr Georgina Russell on "Managing Addison's in the future: Can we re-think glucocorticoid replacement". 
  • Breakout session with Professor John Wass, discussing exercise and adrenal insufficiency.
  • Breakout session with Dr Steve Kell, discussing emotional wellbeing and balancing stress with adrenal insufficiency.
  • Breakout session with Endocrine Nurse Specialist Lisa Shepherd, who helps you prepare and practise with your hydrocortisone emergency injection.


Become a member

By joining as a charity member, you get access to a range of additional resources and support for managing your condition. You'll be joining a vibrant, supportive, engaged community of people affected by Addison's and adrenal insufficiency.

Your membership helps to give our charity a stronger voice, fund vital research, enable the production of our free publications and our work to promote better medical understanding, working in cooperation with leading adrenal specialists. We couldn't do this without the fantastic support of the Addison's and adrenal insufficiency community! Together, we're stronger.

Become a member


Update your contact details, your membership type, or your contact preferences

If you would like to update your membership record with a change to your personal details, or change the type of membership you have (e.g postal or digital), you can do this by visiting the ADSHG Hub.

  • Click on the ADSHG Hub button below
  • Enter your email address and you will get sent a link to click to log in and see your membership record.
  • Update your personal details using the Edit Button.  If you change your email address, please delete any previous ones that you no longer want used.
  • To change your membership type, use the Edit Button.
  • Log out of the ADSHG Hub (top R).

ADSHG Hub

Your member forum account

When you join the ADSHG, an account is created for you on our online forum, and you will be sent details on how to log in.  If you have any problems logging in, please visit our Membership Help page for more information.

Published: 18th March, 2019

Updated: 2nd December, 2025

Author: Anonymised User

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Latest

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  • Addison's & Adrenal Insufficiency: Advice for Dentists

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    Read our guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.

  • Surgical Guidelines

    Surgical Guidelines

    The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.

  • Updated NHS Steroid Card Released

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    Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!

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  • Coronavirus Vaccines and Adrenal Insufficiency

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    Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

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AGM Conference Ireland
Research Grants

Research Grants

One important strand of our work as a charity is our 'Advance' strand: funding, promoting and contributing to the development of new innovations and research to improve treatments and quality of life for members of the adrenal insufficiency community. Here we share the projects we are currently supporting thanks to the generosity of our donors, members and fundraisers. Read more

Published: 22nd May, 2023

Updated: 7th January, 2026

Author:

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Copyright © Addison's Disease Self-Help Group Registered as Charity number 1179825. Company number CE015063

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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