Whether you live with primary (Addison's), secondary, or tertiary adrenal insufficiency, this day is for you. For 2026 our theme is ‘Turn Awareness into Action’, a call to move beyond knowing and into doing. Find out how we're taking action and how you can get involved! Read more
Your experience matters. Please complete the online questionnaire or register for a 1:1 interview. This important patient study on the Prevention & Management of Adrenal Crisis is led by Dr Sofia Llahana & is partly funded & in collaboration with the Addison's Disease Self-Help Group. Read more
Following the MHRA approval of Efmody® for use with adrenal insufficiency patients in the UK, we bring you more information on how Efmody® works, the research supporting it's benefits, and how to get a prescription. Read more
Each year, supporters of the Addison’s Disease Self-Help Group proudly take part in the LLHM (London Landmarks Half Marathon) to raise vital funds and awareness for Addison’s disease. This year, Ciara and Margaret took on the challenge in memory of Margaret’s niece, Maggie. Their inspiring experience is shared below in Margaret’s own words. Read more
We are proud to award a £10,000 grant to support Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham with their research into the management of adrenal crises in UK hospitals. The data collected will help clarify best practice and drive improvement in adrenal crisis care. Read more
Thank you to Northumbria Healthcare NHS Trust endocrine nurses Jane Craig and Joanne Wardle for working with the ADSHG to provide an excellent Injection Training event just outside Newcastle on 28 Mar 2026. Nearly 50 attendees joined us for a Sick Day Rules Refresher and hands on injection training, and left feeling more informed, confident and less alone. Read more
Our photo gallery of a fantastic afternoon with over 90 delegates and a stellar panel of endocrine healthcare professionals, all facilitated by the staff and volunteers of the Addison's Disease Self-Help Group (ADSHG) Read more
We share the news from Advanz Pharma, that they have permanently discontinued the manufacture of hydrocortisone sodium phosphate in the UK. Read more
Hear how ADSHG made an impact at the Society for Endocrinology BES Conference 2026! We highlighted the challenges faced by people living with adrenal insufficiency and collaborated with healthcare professionals to drive improvements in patient safety and quality of life. Read more
Hydrocortisone tablet prices vary and some strengths cost much more than others. We explain why the cost of lower-dose tablets matters for the NHS, how to talk to your GP if splitting tablets is difficult, and what to do if your hydrocortisone tablets are crumbling. Read more
The UK Rare Diseases Framework has been extended until 2027, thanks to Genetic Alliance UK, ensuring continued focus on improving diagnosis, care coordination, specialist access and treatment for the 3.5 million people in the UK living with rare conditions. Read more
You are invited to take part in an online survey exploring what living well means to adults with Addison’s disease, led by Zöe Defoe from Anglia Ruskin University (ARU). Read more
Watch back our webinar in collaboration with Rareminds, exploring the emotional challenges of living with adrenal insufficiency & learn practical ways to support your wellbeing. Read more
Help shape research into fatigue in adrenal insufficiency by taking part in this online research survey, led by Professor Simon Pearce, Newcastle University, in collaboration with the Addison's Disease Self-Help Group. Read more
We have become aware of a typo on two of our publications: The Adrenal Crisis Guidelines form, and the ADSHG Steroid Emergency Card. Read more
You are invited to take part in this research study exploring what living well means to adults with Addison’s disease, led by Zöe Defoe from Anglia Ruskin University (ARU). Read more
Say No to Flu! Book your vaccination today. There is no need to miss out, as it is free to people who are steroid dependent. Consultant Endocrinologist, Dr Prete, explains more about the importance of getting your winter vaccinations to stay safe. Read more
Our letters support you when advocating for yourself in a healthcare setting. Find out more about the Steroid Refusal letters and Summary Care Record letter for GPs. Read more
Today is Addison’s Disease Day! Read on to find out how you can raise awareness and celebrate the incredible Addison’s disease and adrenal insufficiency community. Read more
The Department of Health and Social Care (DHSC) has confirmed an upcoming shortage of hydrocortisone sodium phosphate for emergency injection kits from the end of February 2025, with supply expected to resume in May 2026. Read more
CoMICsLite: making health information simple and accessible for all. Here the team explain more about their latest video, glucocorticoid-induced adrenal insufficiency, also known as tertiary adrenal insufficiency. Read more
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The year we celebrated our 40th anniversary and took on the Addison's Roadshow! Read about our events which took part in Glasgow, London, Cardiff and Newry. Read more
Ambulance trusts have now moved away from 'red flagging', when people with steroid dependency could have their address 'flagged' to show they were at risk of adrenal crisis. Read on to learn more about Summary Care Records and new systems to keep you safe in an emergency. Read more
Calling families and young people with adrenal insufficiency! Please consider completing this survey to help develop national education standards and resources for sick day and emergency management with BSPED. Read more
NICE has published its first-ever national guidance for the identification and management of adrenal insufficiency. Read more
Introducing Rareminds new Wellbeing Hub and Podcast - vital resources designed to help individuals navigate some of the emotional challenges shared across rare conditions. Read more
Happy Addison’s Disease Day! Read on to find out how you can raise awareness and celebrate the incredible Addison’s disease and adrenal insufficiency community. Read more
Hear about our Patient's Voice session at the European Society of Endocrinology Conference, ECE 2024, the largest endocrine event in Europe. Read more
The Society for Endocrinology invited the ADSHG to their annual Clinical and Endocrine Nurse Update, to help raise awareness of adrenal insufficiency amongst endocrine teams. Read more
From 1 September 2023, the eligibility criteria for the free NHS shingles vaccine will expand. So what is the impact of shingles on people living with Addison's and adrenal insufficiency? We speak with Prof John Wass to explain more. Read more
Hydrocortisone Sodium Phosphate for emergency injection kits is once again available on prescription having been unavailable due to supply issues. Read on for guidance on requesting a prescription from your GP and support for learning the emergency injection. Read more
Our medics have been keeping an eye on pandemic developments. This page is up to date but we will continue updating it regularly as we find out more information from the government. Read more
Development of a prototype sensor to detect cortisol levels is underway. We let you know how you can contribute to the next stage of this research and hear from the Bionics+ team on their project known as a closed loop platform for endocrine system management. Read more
A new Consultation Reference Guide to support endocrinologists & nurses in their review of people with Addison’s disease, during diagnosis as well as follow-up appointments, is now available on the Society for Endocrinology & ADSHG websites. Read more
Do you have adrenal insufficiency & have experienced an adrenal crisis in the past 3 years? You're invited to take part in this research led by Aldons Chua, to improve adrenal insufficiency & adrenal crisis management. Read more
Working with the Royal College of General Practitioners (RCGP), we've launched a GP education module titled “Adrenal insufficiency with a focus on Addison's disease” providing a free eLearning module for GPs across the UK. Read more
The previously branded ‘Solu Cortef’ hydrocortisone injection will now be known as ‘Hydrocortisone 100mg Powder for Solution for Injection or Infusion’ as it changes to the generic version. Read more
We’re pleased to announce that the ADSHG is partnering with The Wren Project to help those of you who are finding it hard coming to terms with a new diagnosis or handling the emotions that come along with other difficult stages in managing adrenal insufficiency. Read more