Our charity is at the forefront of medical research into Addison's disease and adrenal insufficiency thanks to the work of medical researchers working in this important field of endocrine research. This is an exciting area of medicine where you have the chance to make a real difference to the lives of those living with these rare conditions.

We are here to support research that seeks to improve the lives of people with Addison's and adrenal insufficiency. If you're looking for funding for research, please visit our research grants page to find out more.

Looking for support for your research study?

We support researchers looking for the lived experience of people with Addison's or adrenal insufficiency. From participants to take part in research studies, Patient and Public Involvement and Engagement sessions, our "Behind the Research" articles and more. 

If you'd like to discuss this more, please get in touch through our online research participant request form.

Support from the ADSHG for your Research

One researcher we worked with commented:

"I haven't worked with such an engaged patient organisation previously and it makes such a massive difference."

We encourage researchers to consider:

• Whether their research outcomes have any potential long-term benefit for people with Addison's, adrenal insufficiency and those who are steroid-dependent.
• How clear they are about the potential impacts of their research on participants. This means the potential for either personal benefit or growth, and psychological or physical harm.
• Provide supporting documentation, including any patient information sheets that will be offered to participants, a copy of the ethics application or approval, and the research grant application where relevant. For online questionnaires, please supply a Word or PDF file copy of the full questionnaire.

Our research participant recruitment application process

Please allow 6 - 8 weeks for a decision from the trustees on any research application. Please note that the trustees will not ordinarily consider research approaches where the researcher has not sought ethics approval from their supervising institution. The ADSHG is unable to offer a fast track approval process for quick-turnaround questionnaires.

If you have any queries, or would like to discuss your research with us ahead of applying, please contact us via our online form.

Supporting ADSHG funded research

Anyone wishing to make a charitable donation towards the work of the ADSHG in supporting medical research can do so here.

Thank you for your support and your interest in this important but sometimes overlooked field of endocrine research. Together we will improve the lives of those with Addison's disease and adrenal insufficiency!

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