Unlock the insights: Recordings of the ESE Adrenal Patient Forum now available.

If you missed the first Adrenal Patient Forum, presented by Endocrinology experts from around the world, the recorded event is now available to view on demand. So catch up on all the invaluable insights and expert discussions at your convenience!

Hosted by the European Society of Endocrinology (ESE), the webinar:  ‘Adrenal Insufficiency: daily living and adrenal crisis prevention’, attracted an international audience of 600 participants from 50 countries. Attendees heard from clinical and patient experts from Norway, Spain, the UK, Denmark, Italy and Germany, discussing the various aspects of living with adrenal insufficiency and preventing and managing adrenal crisis.

From the ADSHG, Dr Alessandro Prete and Philippa Sharman were part of the programme committee organising the event, as well as presenting on the day; providing a clinical perspective and patient experience.

Watch the on demand recordings

Here we offer a summary of the key points from each session.  

• Session 1: Daily living with adrenal insufficiency
  • What is adrenal insufficiency?
  • Sick Day Rules
  • Patient-held medical alerts
  • Impact of emotional stress
  • Abnormal sleeping patterns – from night shifts to “long” days
  • Travelling – steroid therapy over long-haul flights and the impact of hot weather

 Session 2: Prevention and management of adrenal crisis

• • How to recognise an adrenal crisis
  • Learning your individual symptoms
  • Personal experiences of managing adrenal crisis: emotional stress trigger leading to adrenal crisis on a plane, and physical stress trigger from gastroenteritis
  • Self-administering the injection when going into adrenal crisis
  • Triggers of adrenal crisis
  • Prevention of adrenal crisis – steps you can take at home
  • Management of adrenal crisis – education education education!

Your questions answered

Attendees submitted 55 questions prior to the event and an additional 400 during, highlighting the strong demand from our community for reliable, trusted information.

As well as each session having its own question and answer (Q&A) session, a general Q&A also took place covering topics such as antibodies, menopause, the menstrual cycle, remaining symptoms when on replacement therapy, and new treatments including Efmody® and infusion pumps. All Q&A sessions were recorded, so if there's a question you've always wanted to ask, it's likely that it was addressed during the event! Be sure to watch the videos today.

 

Supportive global community

By connecting people with adrenal insufficiency with medical professionals, we continue our aim of building a collaborative environment that ultimately aims to improve the quality of life for those affected by the condition. Translations from English to French, German and Italian helped ensure all with adrenal insufficiency are not only informed, but also felt part of a supportive global community.

Catch up on the video recordings now!

The ADSHG is thrilled to play a role in bringing this valuable event to our community. Take advantage of this incredible opportunity to learn from leading international experts on Addison's disease and adrenal insufficiency and catch up on the video recordings today!

A special thank you to the ESE for funding and organising this event, and all the speakers and chairs who volunteered their time to take part:

• Prof. Stefanie Hahner (Germany) 
• Prof. Eystein Husebye (Norway)
• Teresa Valencia (Spain) 
• Dr. Alessandro Prete (UK)  
• Jette Kristensen (Denmark)   
• Dr. Sofia Llahana (UK)
• Antonella Campodall'Orto (Italy)
• Philippa Sharman (UK) 
• Dr. Irina Chifu (Germany) 

Whether you're newly diagnosed or have lived with the condition for years - please join our community and support our cause! You'll receive the latest expert advice, guidance and ADSHG news, whilst being part of our inspiring and supportive community. Become a member today! 

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