Addison's Roadshow @Home - watch online

Addison's Roadshow @Home: Watch it on the forum now!

This year, we have had the privilege of connecting with many of you through our Addison's Roadshows. These special events took place across the UK in Glasgow, London, Cardiff and Newry. You can read about all the events here on our website.

If you missed our London event, or would like to re-watch our expert talks, videos are available on our online forum! From medic Q&A's, group sessions on emergency injections, and expert talks - there’s something for everyone!

We hope you enjoy watching these recordings from our annual ADSHG event!

Watch on the Online Forum

Our 40th anniversary theme 'Stronger Together', resonated deeply at each roadshow, where we shared knowledge, offered support and created connections. We are thankful to everyone who joined us in making our roadshow events possible. Your involvement proves that when we come together, we are truly stronger.

We'd love your feedback on the day, so please share your thoughts by completing our short online survey.

AGM Feedback Survey

Watch Online

Available to watch on our Online Forum, catch up on charity news as well as hearing from our speakers and panellists. If you're not a charity member but would like to catch-up on the day, join today here on our website!

Charity News and Updates

Chair of Trustees, Dom Hargreaves, gives his opening comments for the day.
Watch our special presentation to the Deana's son Daniel. Deana Founded our Charity in 1984!
We present the inaugural Deana Kenward Award for Special Contribution to the Charity!

Expert Speakers

Clinical Advisory Panel Chair, Professor John Wass, presents on: "Adrenal Insufficiency: Past and Present”
Aldons Chua RN (Endocrine Nurse Specialist) leads one of our emergency hydrocortisone training sessions
Julia Anthony MS (SOLUtion Medical) presents: “Research update - one-step injector for adrenal crisis, TwistJECT™"
Dr Alessandro Prete: “Adrenal Insufficiency: Looking to the Future”
Medical Q&A panel session answers your questions. Our thanks to Professor John Wass, Dr Alessandro Prete, Lisa Shepherd RN, Dr Sofia Llahana and ADSHG Chair Dom Hargreaves

Connecting with our community

ADSHG member Lisa, shares with us her experiences from the London Addison's Roadshow.

"I can't tell you how worthwhile, well planned, informative and emotional I found the day. I learned so much and felt privileged, after many years of not knowing anyone else with Addison's, to not only meet with so many who share the same condition as myself but to also be able to ask experts in this field questions. Alongside of this, I felt humbled to meet some of the many people who give their precious time for the benefit of educating and advancing things for us members.

I was first handed Deana's phone number around 31 years ago and I tentatively called up to ask her what the deal was about 'Atkinson's disease'. I was in such shock; I didn't even get the name of it correct. Her calm and reassuring voice was such a source of comfort to me having been told, at the age of 24, that I had a very serious condition I'd never heard of and was so unwell, that I'd already probably had it for around eight years by the time I was diagnosed."

"It has since transpired that it is very likely that my grandmother died from this when my mum was just a very little girl and before anyone really knew about Addison's disease. Thanks to medical advances, I have worked as a Teacher and Lecturer, travelled all over the world, had two wonderful daughters and my husband and I currently Foster 4 more young people aged 3, 6, 8 and 15.

I shall be forever grateful to Deana and all the other volunteers and would very much like to help in any capacity that I can in the future. On the day I was wearing a dress in the Addison's colours. I wish I could say I had meticulously planned this, but it was intact purely a wonderful coincidence, perhaps somewhere in my subconscious I picked it out."

Lisa x

Not yet a member?

Our AGM is a member event - just one of the many benefits of an ADSHG membership, along with access to our member only online forum, our welcome pack and our magazine and newsletters 'Keeping You Posted'. Be an active part of the Addison's and adrenal insufficiency community - together we are stronger! If you can't afford membership at this time, please apply for Sponsored Membership.

Join today

Future Events

Find out about future events and how to become a local volunteer social meeting host on the event section of our website. We rely on the support of our incredible volunteers to make our events possible, so thank you to everyone for your support and for getting involved!

Events

Thank you for joining us on our special 40th anniversary year, and for your continued membership and support.

Together we will improve the lives of those with Addison's disease and adrenal insufficiency!

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Latest

Manchester Member Get-Together: 26 Sept 2026

Join our second Member Get-Together in 2026, to be held in Manchester on Saturday 26 September. Find out more and how to get your tickets!
Professor John Wass Research Grant Winner 2026

We are proud to award a £10,000 grant to support Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham with their research into the management of adrenal crises in UK hospitals. The data collected will help clarify best practice and drive improvement in adrenal crisis care.
ADSHG AGM - Saturday 4 July 2026

Sign up to attend the 2026 AGM for the Addison's Disease Self-Help Group. Enjoy a presentation from the John Wass Research Grant Award winners for 2026 about their research study around adrenal crisis management in hospitals.
Emily’s Story: Sharing Life with Addison’s Online

Emily is a content creator who shares her journey with Addison’s online, alongside her countryside living in the Lake District. For her advocacy is more than awareness, it’s about making our “invisible” health condition seen and understood.

Sick Day Rules

Minor ailments can affect anyone with a steroid-dependent adrenal condition very differently. Things like vomiting, diarrhoea, colds and flu could cause an adrenal crisis. It’s important that you spot the early symptoms of a bug or cold and adjust your steroid replacement medication.
Adrenal Crisis - Emergency Help

Adrenal crisis is a time-critical, life-threatening emergency and must be treated immediately. Read the guidance on treating a steroid-dependent patient in adrenal crisis.
The Emergency Injection for the treatment of Adrenal Crisis

Understanding what an Emergency Injection kit is, how to inject and how important it is to use the injection during an Adrenal Crisis.
What are Addison's disease and adrenal insufficiency?

Find out more about Addison's disease and adrenal insufficiency and and how they are treated.
Why Salt?

Why do people with Addison’s and adrenal insufficiency crave salty, acidic and sour foods at diagnosis, and then salt remains our “pick me up” when diagnosed? Professor Simon Pearce explains the connection between aldosterone, fludrocortisone and why you should always listen to your salt cravings.
Addison's & Adrenal Insufficiency: Advice for Dentists

Read our guidance for major and minor dental procedures. It is important to recognise the physical stress of any invasive dental procedure and to ensure that adequate glucocorticoid cover is provided for steroid-dependent patients.
Surgical Guidelines

The ADSHG surgical guidelines are intended for the information of your medical team or your dentist and have been developed by our Clinical Advisory Panel.
Updated NHS Steroid Card Released

Following the early release of the new NHS Steroid Emergency Card back in March to keep patients with Addison's or adrenal insufficiency safe during the COVID-19 crisis, the NHS steroid card has been updated and physical copies will be available to order from Tuesday 18th August 2020 for hospital teams!
Coping with psychological stress

We explain why more hydrocortisone may be required to cope with emotional stress and outline some techniques to reduce stress and improve wellbeing.
Coronavirus Vaccines and Adrenal Insufficiency

Everyone with a steroid-dependent adrenal condition should get the coronavirus vaccine and boosters to reduce their risk of getting coronavirus. This is because people who are steroid-dependent are at increased risk of needing hospital care if they get coronavirus, due to the risk of adrenal crisis.

Research Grants

One important strand of our work as a charity is our 'Advance' strand: funding, promoting and contributing to the development of new innovations and research to improve treatments and quality of life for members of the adrenal insufficiency community. Here we share the projects we are currently supporting thanks to the generosity of our donors, members and fundraisers. Read more